My head is spinning with so many thoughts and Idea I have no idea where to start, Ok maybe that’s not entirely correct.

Let’s start with some Facts and Myths about Autism, Because here is the thing I really don’t care if you have an issue with me wanting to be an advocate for a condition that people truly don’t understand.

Here is a fact It’s ok to talk about:-


Heart Conditions






What you’re not allowed to talk about is hidden condition or disabilities:




EDS (EhlersDanlos syndromes)

Chronic Pain

Both lists can go on and on and on, But why is it ok to talk about one but not the other?

How do I work with people who:

A) Refuse point blank to actually accept I have these condition

B) Will push and push and push, for me to change when 90% of the time I physically cannot.

These are some of the fact and History from the National Autistic Society (

The term ‘autism‘ is used here to describe all diagnostic profiles, including Asperger syndromeand Pathological Demand Avoidance (PDA).

  • Without understanding, autistic people and families are at risk of being isolated and developing mental health problems.

  • Autism is much more common than many people think. There are around 700,000 people on the autism spectrum in the UK – that’s more than 1 in 1001. If you include their families, autism is a part of daily life for 2.8 million people.

  • Autism doesn’t just affect children. Autistic children grow up to be autistic adults.

  • Autism is a hidden disability – you can’t always tell if someone is autistic.

  • While autism is incurable, the right support at the right time can make an enormous difference to people’s lives.

  • 34% of children on the autism spectrum say that the worst thing about being at school is being picked on2.

  • 63% of children on the autism spectrum are not in the kind of school their parents believe would best support them3.

  • 17% of autistic children have been suspended from school; 48% of these had been suspended three or more times; 4% had been expelled from one or more schools4.

  • Seventy per cent of autistic adults say that they are not getting the help they need from social services. Seventy per cent of autistic adults also told us that with more support they would feel less isolated5.

  • At least one in three autistic adults are experiencing severe mental health difficulties due to a lack of support6.

  • Only 16% of autistic adults in the UK are in full-time paid employment, and only 32% are in some kind of paid work7.

  • Only 10% of autistic adults receive employment support but 53% say they want it8.


Rather than tell me to get my head out my arse, How about telling the people who refuse to allow me to develop as the unique person I am to get their heads out of there arses and start looking at the world as it is full of INDIVIDUAL PEOPLE

“Autists are the ultimate square pegs, and the problem with pounding a square peg into a round hole is not that the hammering is hard work. It’s that you’re destroying the peg.”

― Paul Collins





One thought on “MY HEAD IS SPINNING

  1. I can totally relate to what you’ve written.. but for me it’s always, ”you don’t seem ADHD to me…” or something like that. I always get so tired of people telling me: ”that’s not you” ”you’re not like that”… etc. So please tell me what I’m like, because I obviously don’t know. Gets me to question everything even more..

    Liked by 1 person

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